Founding Members

The GAP founding sponsors are national and regional PKU support groups from around the globe including Argentina, Australia, Brazil, Canada, Chile, Europe, Mexico, Turkey and the USA.

As people living with PKU, our priorities are:

To create a global platform for PKU advocacy that includes ensuring website page universal access to newborn screening and diagnosis, treatments and comprehensive care;

To mentor like-minded patient associations and groups and offer best practices and support that are sensitive to their experiences, culture, language(s) and laws;

To increase collaboration among PKU researchers, scientists, clinicians and patient groups to move basic science and research forward to accelerate new knowledge, treatments, and a cure.