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Global PKU Patient Conference

Global PKU Patient Conference One World, One Vision 10th – 11th September Click here to register for the event

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2018 NPKUA Conference

Mark your calendars for our 5th NPKUA Conference, July 5-8, 2018 in Atlanta, GA! In 2016 we “Took the Lead For PKU”. Join us as we “Advance the Dream” for PKU this year. The conference will be held at the Hilton Downtown Atlanta, which is located in an area great for walking and sightseeing! Use Read More

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Pegvaliase (PalynzigTM) has been approved

Fresh from the Press: Pegvaliase (now called PalynzigTM) has been approved by the FDA for use in adult PKU patients in the USA with phenylalanine > 600 micromol/l. Why is a different treatment needed? ‘You are not lucky when you have PKU’ I explained to a colleague. He replied “Why? What you’ve always told me Read More

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