PKU Organizations

Information for Local PKU Organizations and/or Associations, coming soon.

 

Every hour of every day another baby experiences the fate of preventable brain damage.</p?

” Worldwide, approximately 35 babies are born each day at risk of developing severe and irreversible brain damage by the age of one due to phenylketonuria (PKU). “

This outcome is completely preventable with the aid of universal newborn screening and immediate treatment. Unfortunately this screening exists only in a limited number of developed countries, exposing to 24 babies each day the tragic fate of lifelong brain damage that could otherwise be prevented with the prick of a heel.